Grace’s story: Beating the odds after multiple surgeries to treat rare genetic disorder
Photo courtesy of Michelle Rogers
When Michelle was pregnant with Grace, concerns developed early in her pregnancy. Grace wasn’t reaching certain fetal markers – she couldn’t suck her thumb or swallow. So, at 37-weeks, Michelle’s physicians decided to deliver Grace via C-section.
To establish a diagnosis, Texas Children’s Hospital’s Dr. Minifee and team performed a laparotomy on Jan. 16, 2012. A biopsy confirmed 3 day old Grace had Hirschsprung disease. It’s when a baby’s intestinal nerve cells in the colon are missing. This causes intestinal obstruction and deadly infections, like sepsis.
Today, 9-year-old Grace is doing very well. She is a 3rd grader who loves to eat and has a huge palate. Since her last surgery, she no longer needs a colostomy bag.
Without the support Grace received within the first few hours of life, she wouldn’t have survived with this GI condition. We are creating and saving a lives with the resources Texas Children’s offers in improving patient care and outcomes.”
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